Sunday, 10 October 2010

Piggy Flu Strikes

Well - I got through the hyped up season of piggy flu last year when everyone was paranoid, but I didn't get through my own birthday party without it. 

Within two days of my 27th birthday party I was really sick.  In fact I got sick a whole lot faster than I usually do.  The initial coughing fits lasted until I threw up (which was unpleasant to say the least).  Initially my housemate and I went to a general medical clinic to hopefully get tested for whooping cough...  The GP wasn't overly interested in testing and instead handed us the antibiotics for whooping cough.  Being aware of the fact my own GP usually likes results I called and he left a naso-pharyngeal aspirate form at the front desk.

By the Tuesday morning I was calling my GP at regular intervals to say "I'm getting worse fast".  Then the call came through just after lunch to notify me it was swine flu and I should head to the hospital.  I was meant to be in the supreme court for that entire day, but swine flu had its own ideas. 

By the time I got home (40 minutes after the phone call), to pick up PJs etc, my temperature was a cozy 39.6 degrees.  I could barely think while packing and decided not to risk driving down to the hospital.  Amazingly the cab driver was a friend of mine from a volunteer organisationg I'd previously been with.  With that as reassurance I relaxed and slept for most of the journey.

Arriving at the hospital they took me in fairly quickly (to isolate the swine flu patient).  The nursing staff were great and eventually we brought my fever down.  There was some awkwardness when my admitting registrar turned out to be a classmate - but he was professional and is a genuinely nice guy anyway...

The Wednesday was my birthday, and by 1am on my 27th I was up on a ward in isolation.  Once again the staff were fantastic!

I spent just a couple of short days in hospital, but was definitely too dysfunctional to be at home during that period.  I will admit to feeling slightly jipped after being vaccinated 2 times for this swine flu strain.  I'm still coughing poast flu (but am no longer contagious). 

So now, hopefully after 2 immunisations and 1 active flu I might actually be immune.

=)

Monday, 20 September 2010

When natural medicines achieve the most...

It took a while, but I got through this year's flu...

What is exciting is that a product I've been advocating strongly for over the past 2 years is going to be on TV; and so am I.  How, you ask?  Well my cheerful doctor has been asked to give an expert medical view on the product and for the show they need a patient who has had some success with it.

I realised when I was asked that as far as chronic illness goes, I'm not quite as unhealthy as a few years ago.

The product we are endorsing is "olive leaf extract" active ingredient, oleuropein.  Prior to taking this I had the most dreadful chronic cough.  I sounded like a smoker of 50 years trying to cough up a lung.  It wasn't just sporadic coughing; I coughed several times a minute, all day long...  It was disruptive to my own thinking and also to those around me.  Finally in 6th year of my medical degree I came across olive leaf extract.  Being entirely desperate to stop the coughing I bought some.  Within a few days I was no longer coughing repeatedly.  For the first few weeks I found I needed to take it every few hours to keep the cough at bay, but then after a while I found I was fine just taking it daily (or sometimes once every couple of days).  I still cough when I get acute infections, but it is no longer something I have to contend with every day.

Of course, I'm nervous about the prospect of going on TV, but at the same time it is a reminder to me that I have improved with this natural supplement.  And I realise the times I have been most sick in the past few years have been when I haven't been bothered taking the oleuropein (not for any fault of the product, but because I just don't like taking anything).

So here's to a natural solution...

Meanwhile I realise I am well overdue for an infusion, but I really dno't see the point...

Sunday, 15 August 2010

Annual bout of influenza

One of the problems with CVID is that you often don't produce antibodies in reponse to infections or immunisations. 

That seems to be the case this year...  While I did skip the flu vax in April this year, I actually had one in November (less than 12 months ago).  My luck being what is is, I have confirmed influenza now.  For once we didn't have to worry about me trying to produce a decent sputum sample.  My doctor requested the dreaded naso-pharyngeal aspirate for rapid viral antigen screening.  Within 24 hours we had our result.

I'm now enjoying my course of tamiflu and incredibly dysfunctional.

I now wonder why on earth I bother to continue with IVIG infusions each month and get stabbed for immunisations each year.  I suppose I could internally justify these assaults as protecting me from more serious illnesses. 

What is done is done, what is contracted is contracted...

I can't wait for summer!

Saturday, 31 July 2010

Ready, Set, Type...

Most people go to their doctor and see a 'doctor'.  For many people in the population, their doctor is a bank of knowledge who can do things to fix sick people.  A lot of people miss the obvious fact that doctors can get sick too.  Yes, even the profession who know all about curing illness still suffer from it.

Most doctors are close to retirement when they face significant illness.  This is also true of the general population.  Why is this?  There are so many reasons...  Consider this; most people go through medical school in their early 20s.  A medical degree is a substantial amount of work, and one that requires a time commitment.  If you have significant illness during those years, the odds of getting through even just your initial training are stacked against you in a pretty big way.

I got through medical school with those odds.  For the first 5 years of my medical degree I battled infection after infection.  This was raised with  more doctors than I can count using my fingers and toes.  By 2007, the 5th year of my degree, I understood that pushing for treatment and investigation into this problem would only strengthen the widely held viewpoint that I was a hypochondriac, or trying to manipulate people for attention.  I had settled for simply asking for medical certificates under that guise when I was too sick to attend my placements. 

In the middle of winter, my usual GP was away.  I was on a paediatric rotation and it seemed children were the most germ generous population I had ever come across.  While fighting off one of the many bugs passed onto me from my patients I approached a local medical practice for a certificate.  All I wanted to do was sleep. 

The doctor at the surgery greeted me cheerfully, with energy, and with no apparent judgement.  I was in no mood for his good humour and joyful approach to his work.  As blunt as I could be I stated I was there for a medical certificate and is he could please just write the piece of paper and sign it I would be gone quickly.  Then this doctor did the strangest thing; he took a history.  Much to my dismay he said he would be happy to give me the certificate, but only after he actually made further enquiry into my medical history.  It may sound as though I am being sarcastic when I say this particular doctor did something strange by taking the time to ask me questions and consider the answers, but in terms of my experience of the medical profession up until that point in time, I understood that medical students were taught to take histories, exam people and do investigations, but that the majority of practitioners simply dismissed coughs and colds without much consideration at all.  So for me, it was strange. 

I was livid about having more sleep time taken from me for the purposes of what I assumed would be a medical history that yet another doctors would conclude could only belong to an attention seeking hypochondriac.  But, this doctor surprised me again...

"You've been sick this long, and this many times, and no-one has taken the time to find out why?"  I wasn't sure how to respond given my mind had already settled for the fact that I was unlikley to ever have someone give consideration to the facts.  After I confirmed this statement he called a respiratory doctor who had been responsible for admitting me to hospital on numerous occasions.  He spoke to this God-like specialist in rather forceful and demanding, yet still polite, tones.  That evening I was admitted to hospital for investigation. 

24 hours after being admitted we had a blood test result.  "You have low IgG!".  Ok.  I understood what IgG was, but I hadn't learnt what causes it to be low, how you treat it, and what it means to not have enough.  "You will need an infusion". 

GREAT!  I thought to myself.  How fantastic.  Once I have had this infusion I will be healthy and able to enjoy life.  I was mistaken:  I did not need "an infusion", what he meant to say was "you will need infusions" (for the rest of your life).  Ah.  A slightly different story.

Of course we sent off more blood samples for further testing etc, but it was essentially that day in July 2007 that I was diagnosed with the most frequently occuring primary immunodeficiency; Common Variable Immunodeficiency. 

I started treatment, infusions of IVIG, shortly after this diagnosis was made.  Every month I would present to the hospital for a day admission to infuse what I nick-named "vegetarian blood".  In November of that year I finally opted for an indwelling port-a-cath to be inserted after faceing mutiple jabs for IV canulas every day for a one week period.  The port, named "Oscar" by my classmate Mital, was inserted in the study break immediately before my final medical school examinations. 

Soon I would discover the joy of independent needling of the port.  I pushed for home infusions, which eventually began in January of 2009. 

Finding out the diagnosis, CVID, was a journey,  Living with it and trying to maintain maximum health with this condition is a journey that I'm still on.  I've tried so many extra treatments and had so many investigations. 

Someone calles my condition a "disease" while introducing me to a rotation supervisor.  I remember immediately feeling disgusted at this description, while full well knowing that is technically what it is.  For me, the word disease conjures up images of lepers and those afflicted by purulent infectious conditions.  But in reality, this disorder is a disease:  My B-cells don't form functional plasma cells...  Part of me doesn't work properly because of a disease... 

Has it been easy being a patient who is part of the medical profession?
Has it been easy being a doctor with a significant physical illness?
Have I found the solution to all of my problems?
What have I found solutions to?
Have I learnt things through being a patient that every doctor should learn?

I have a perspective on illness that few patients get; I see the other side of the fence a well.  I have a perspective on medical practise that most doctor will not get until they are much older.  These different perspectives deserve to be explored.